We support research into gene therapy treatments for rare diseases.
Every help is a great motivation for us and a dose of energy that keeps us going. You can help too!
Census of patients with Angelman syndrome in the Czech RepublicCOMPLETE SURVEY
Our mission is to connect the worlds of science, medicine and patients.
We concentrate on the future and refuse to take no for an answer. As the first NGO to actively start research in the field of rare disease treatment in the Czech Republic, we aim for a better future for people affected by rare diseases in order to easily access the treatment they need to live healthy, happy and fulfilling lives.
ASGENT is hellbent on helping scientists freely research treatments and potential cures for rare genetic diseases – faced by over 350M people worldwide. This is beyond the number of cancer and AIDS patients combined.
Read stories of children with Angelman syndrome
The inspirational stories of small heroes who passionately fight against adversity.Read
Ing. Alexandra Udženija
Deputy Mayor of Prague 2
It is very important to promote awareness of such unique research and to help not only Oli, but all children with Angelman syndrome in order to give them and their families hope for a full life.
Lead singer of Skyline, where he has been active for almost 15 years. Coach - founder of TRANSFORMERS42
I am happy to become an ambassador of ASGENT because it is a project that can help thousands, including individuals like Oliver.