Oliver’s story

THE INTERNATIONAL DAY OF ANGELMAN SYNDROME

17. 2. 2021 | Category: Nezařazené Oliver's Story Research PRAGUE (FEBRUARY 16, 2021) - The Dancing House was lit up in blue on Monday, February 15. Under the auspices of Mayor Jana Černochová and Deputy Mayor Alexandra Udženii of the Prague 2 Municipal District on the occasion of the...

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31. 12. 2020 | Category: Nezařazené Oliver's Story Research

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PF2019

23. 1. 2019 | Category: Oliver's Story Research Happiness from life, good health, many personal and professional successes in 2019 we wish to  all our donors, everybody who support our project in last year,  everybody who visited our website and started to be interested in our project,  everybody...

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When you first hear the diagnosis

1. 3. 2018 | Category: Oliver's Story It all began at the beginning of February 2018 on the day we were announced Oliver's diagnosis. A rare genetic defect, the so-called Angelman syndrome, an incurable disease at this time. I never forget the moment when I first read...

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