News

New project “Bake for the angels”

New project “Bake for the angels”

23. 9. 2021 | Category: Research With this contribution we would like to thank the grandparents of little angel Kryštof for their project "Bake for the angels".  The "sweet breakfast" project was founded by the grandmother and grandfather of a boy who was not lucky enough...

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New member of the expert board – MUDr. Alena Zumrová, Ph.D.

New member of the expert board – MUDr. Alena Zumrová, Ph.D.

10. 4. 2021 | Category: Nezařazené Research We are incredibly honoured to welcome a new addition to our team on the expert board. We greatly appreciate the doctor for her lifetime of experience in neurology and her willingness to support patient efforts. Our core mission is to...

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What are cell and gene therapies and how do they work?

What are cell and gene therapies and how do they work?

15. 3. 2021 | Category: Research Transformative cell and gene therapies represent a new frontier of medicine. They offer hope for many patients, particularly those affected by rare diseases. Gene therapies are a success story of the 21st century, with exciting treatment options in the pipeline...

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THE INTERNATIONAL DAY OF ANGELMAN SYNDROME

THE INTERNATIONAL DAY OF ANGELMAN SYNDROME

17. 2. 2021 | Category: Nezařazené Oliver's Story Research PRAGUE (FEBRUARY 16, 2021) - The Dancing House was lit up in blue on Monday, February 15. Under the auspices of Mayor Jana Černochová and Deputy Mayor Alexandra Udženii of the Prague 2 Municipal District on the occasion of the...

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Farewell And Thanks To a Memmber of The Association’s Professional Council

Farewell And Thanks To a Memmber of The Association’s Professional Council

28. 5. 2020 | Category: Nezařazené Research Professor Macek has been a member of the Expert Council since the beginning of the Association. We appreciate and thank him immensely for his service in the beginning of our activities. Now, Professor Macek's work has taken him to a...

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Introducing our partner – the international company DNV GL

Introducing our partner – the international company DNV GL

4. 9. 2019 | Category: Research DNV GL is global independent services provider in the area of risk management, certification, validation, verification and trainings in all industry sectors with a special focus on healthcare. Last year company DNV GL decided to support our nonprofit organisation ASGENT.ORG. We...

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